Improving Clinical Research by Empowering Participants

Feedback from research participants can help organizations improve clinical trial processes to ensure safety and improve participants’ overall experience. But very few research organizations collect feedback from research participants – not for lack of desire, but for lack of infrastructure and resources.

In June, the National Center for Advancing Translational Science awarded a collaborative grant to six institutions to help them build an infrastructure to routinely collect and analyze research participant feedback. The $2.7 million grant was awarded to Rockefeller University with participation by the University of Rochester, Duke University, Vanderbilt University, Wake Forest University and Johns Hopkins University. 

“Gathering systematic feedback from research subjects is essential to identify the strengths and opportunities for improvement of our research enterprise,” said Ann Dozier, chair of Public Health Sciences and principal investigator on this grant for the University. “Through this project we will help establish comparisons to other institutions in the Clinical and Translational Science Awards (CTSA) Program, contributing to improvements across the consortium.”

The University of Rochester participated in the development of the original Research Participant Perception survey and will now participate in the development of an infrastructure to collect and analyze results.

Learn more about the project being led by Rockefeller University.

Michael Hazard | 1/13/2021