Ewing Sarcoma: Newly Diagnosed

Being told you have (or your child has) Ewing sarcoma can be scary, and you may have many questions. But you have people on your healthcare team to help.

Coping with fear

It’s normal to feel afraid. Learning about the cancer and about your treatment options can make you feel less afraid. This also helps you work with your healthcare team and make the best choices for treatment. You can also ask to speak with a counselor.

Working with your healthcare team

You’ll likely have different types of healthcare providers on your healthcare team. These might include:

• Orthopedic surgeon. This is a healthcare provider who uses surgery to treat bone or muscle problems, including bone tumors.

• Medical oncologist. This is a healthcare provider who specializes in treating cancer with medicines such as chemotherapy.

• Pediatric oncologist. This is a healthcare provider who specializes in using medicines to treat cancer in children and teens.

• Radiation oncologist. This is a healthcare provider who specializes in treating cancer with radiation therapy.

Many other healthcare providers will be part of your team as well. Your team may include physician assistants (PA), nurse practitioners (ARNP), orthopedic and oncology nurses, counselors, and physical therapists. They will answer any questions you may have. They’ll help you through each of the steps you’ll take before, during, and after treatment. Your team will let you know what tests will be needed and the results of those tests. They’ll guide you in making treatment decisions and help prepare you and your loved ones for what’s ahead.

Learning about treatment options

To decide the best course of treatment, your healthcare team needs to know as much as they can about the cancer. This may involve getting some tests and working with more than one healthcare provider. And you may decide that you want to get a second opinion to help you choose a treatment.

Getting support

Coping with cancer can be very stressful. Talk with your healthcare team about seeing a counselor. They can refer you to someone who can help. You can also join support groups to talk with other people coping with Ewing sarcoma. Ask your healthcare team about local or online support groups.