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Health Humanities and Bioethics

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Faculty Work

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Our partnership program between Health Humanities and the University's Memorial Art Gallery (MAG), Five Question Protocol: Art and Observation at the University of Rochester, uses artwork to develop observational, diagnostic, and reflective skills. We are celebrating 20 years of collaborative work.

  • Wellesley, J., Wilkinson, D., & Moore, B. (2024). Wish to die trying to live: Unwise or incapacitous? the case of University Hospitals Birmingham NHS Foundation Trust versus ‘st.’ Journal of Medical Ethics. https://doi.org/10.1136/jme-2024-110365
  • Alpert, A. B., Babbs, G., Sanaeikia, R., Ellison, J., Hughes, L., Herington, J., & Dembroff, R. (2024). Doing justice: Ethical considerations identifying and researching transgender and gender diverse people in insurance claims data. Journal of Medical Systems, 48(1). https://doi.org/10.1007/s10916-024-02111-w
  • Herington, J., Shand, J., Holden-Wiltse, J., Corbett, A., Dees, R., Ching, C.-L., Shaw, M., Cai, X., & Zand, M. (2024). Investigating Ethical Tradeoffs in Crisis Standards of Care through Simulation of Ventilator Allocation Protocols. https://doi.org/10.1101/2024.03.10.24304058 
  • Raz M, Gupta-Kagan J, Asnes AG. Should I Call Child Protection?—Guidelines for Clinicians. JAMA Pediatr. Published online September 16, 2024. doi:10.1001/jamapediatrics.2024.3624
  • Slobogin, C. Review of Halliwell, Hannah, Art, Medicine, and Femininity: Visualising the Morphine Addict in Paris, 1870-1914. H-Sci-Med-Tech, H-Net Reviews. August, 2024.
  • Laura Stamm, opinion contributor. (2024, September 6). Transgender Health Care Bans are sweeping across America. so are the repercussions . The Hill. https://thehill.com/opinion/healthcare/4866043-gender-affirming-care-bans-impact/ 
  • Slobogin, C. (2024). Hidden in plain sight: The covering of patients’ eyes and a microethics of medical photography. Medical Humanities. https://doi.org/10.1136/medhum-2024-012894
  • Moore, B. (2024). Beyond the hospital walls: The role of the ethicist in Community Healthcare Settings. The Journal of Clinical Ethics, 35(3), 208–216. https://doi.org/10.1086/730876
  • Moore, B., & Brown, A. C. (2024). Do reasons matter? Navigating parents’ reasons in healthcare decisions for children. PubMed, 1-16. https://doi.org/10.1080/15265161.2024.2388730
  • Herington, J., & Kluger, B. (2024). Parrots at the Bedside: Making Surrogate Decisions with Stochastic Strangers. The American Journal of Bioethics, 24(7), 32–34. https://doi.org/10.1080/15265161.2024.2353803
  • Blumenthal-Barby, J., Fletcher, F. E., Taylor, L., Nelson, R. H., Moore, B., Saloner, B., & Ubel, P. A. (2024). Ethical Complexities in Utilizing Artificial Intelligence for Surrogate Decision Making. The American Journal of Bioethics, 24(7), 1–2. https://doi.org/10.1080/15265161.2024.2362553
  • Enders, F. T., Golembiewski, E. H., Balls-Berry, J. E., Brooks, T. R., Carr, A. R., Cullen, J. P., DiazGranados, D., Gaba, A., Johnson, L., Menser, T., Messinger, S., Milam, A. J., Orellana, M. A., Perkins, S. M., Pineda, T. D., Thurston, S. W., Periyakoil, V. S., & Hanlon, A. L. (2024). Health Equity Engineering: Optimizing hope for a new generation of healthcare. Journal of Clinical and Translational Science, 1–27. https://doi.org/10.1017/cts.2024.549
  • White, M. H., Ross, L., Gallo, A., & Parker, W. F. (2024). Graft survival of en bloc deceased donor kidneys transplants compared with single kidney transplants. Transplantation. https://doi.org/10.1097/tp.0000000000005058
  • Moore, B. (2024). How A health equity lens can help us rethink quality assessments at the end-of-life. Journal of Pain and Symptom Management. https://doi.org/10.1016/j.jpainsymman.2024.05.021
  • Nelson, R. H., Kious, B., Largent, E., Moore, B., & Blumenthal-Barby, J. (2024). Is Suffering a      Useless Concept? The American Journal of Bioethics, 1–8. https://doi.org/10.1080/15265161.2024.2353799
  • Ross, L. F., & Iltis, A. S. (2024). Medical decision-making for children in families with siblings: Parental discretion and its limits. Perspectives in Biology and Medicine, 67(2), 261–276. https://doi.org/10.1353/pbm.2024.a929022
  • Ross, L. F., Hester, D. M., & Malone, J. R. (2024). Teenage development and parental authority: Applying consensus recommendations to Adolescent Care. Perspectives in Biology and Medicine, 67(2), 227–243. https://doi.org/10.1353/pbm.2024.a929020
  • Salter, E. K., Ross, L. F., & Hester, D. M. (2024). How we found consensus on pediatric decision-making and why it matters. Perspectives in Biology and Medicine, 67(2), 186–196. https://doi.org/10.1353/pbm.2024.a929017
  • Raz, M., Gupta-Kagan, J., & Asnes, A. G. (2024). Disclosure Is an Essential Component of Ethical Practice: JAMA Pediatrics. https://doi.org/10.1001/jamapediatrics.2024.1110 
  • Omelianchuk, A., Capron, A. M., Ross, L. F., Derse, A. R., Bernat, J. L., & Magnus, D. (2024). Neither ethical nor prudent: Why not to choose normothermic regional perfusion. Hastings Center Report. https://doi.org/10.1002/hast.1584 
  • Slobogin, C. (2024). Marsha Morton and Ann-Marie Akehurst (eds), visual culture and pandemic disease since 1750: Capturing contagion london: Routledge, 2023. pp. 270. ISBN 978-1-032-26107-2. £130.00 (hardback). The British Journal for the History of Science, 1–3. https://doi.org/10.1017/s0007087424000384
  • Stamm, L. Article in Synapsis.
  • Mercado, N.R. (2024) Can We Be Creative with Communication? Assessing Decision-Making Capacity in an Adult with Selective Mutism. HEC Forum. https://doi.org/10.1007/s10730-024-09523-8
  • Delany, C., Moore, B., Bhatia, N., Burn, E., Wimalasundera, N., & Preisz, A. (2023). Responding to the ‘crowd’ of voices and opinions in the paediatric clinical space: An ethics perspective. Archives of Disease in Childhood. https://doi.org/10.1136/archdischild-2023-326154 
  • Streicher, S., & Shaw, M. (2023). Motherhood As A Vector For Sexism in Treatment Refusal Controversies. Penn Bioethics Journal, XIX(ii), 24–34. https://bioethicsjournal.com/wp-content/uploads/2024/02/Fall-2023-FINAL.pdf
  • Noohi F, Sundaresan MS, Naylor RN, Ross LF. (2023) Investigator and participant expectations for returning non-genetic results: insights from the Rare and Atypical Diabetes Network (RADIANT) study. Journal of Clinical and Translational Science. 2023;7(1):e260. doi:10.1017/cts.2023.684
  • Raz, M. (2024, January 31). Why mandatory reporting doesn’t keep children safe. Time. https://time.com/6589854/mandatory-reporting-child-abuse-prevention/ 
  • Herington, J. & Friedman Ross, L. (2023) Against the Equality of Moral Spheres in Healthcare. The American Journal of Bioethics, 23:12, 23-25, https://doi.org/10.1080/15265161.2023.2273177
  • Herington, J., Connelly, K., & Illes, J. (2023). Ethical imperatives for working with diverse populations in Digital Research. Journal of Medical Internet Research, 25. https://doi.org/10.2196/47884
  • Herington, J., McCradden, M. D., Creel, K., Boellaard, R., Jones, E. C., Jha, A. K., Rahmim, A., Scott, P. J. H., Sunderland, J. J., Wahl, R. L., Zuehlsdorff, S., & Saboury, B. (2023). Ethical considerations for Artificial Intelligence in medical imaging: Data collection, development, and evaluation. Journal of Nuclear Medicine. https://doi.org/10.2967/jnumed.123.266080
  • Luck, P. & Niknafs, A.M. Reasons Not to Turf a Patient Whose “Belonging” in a Hospital Is Unclear. AMA J Ethics. 2023;25(12):E909-913. doi: 10.1001/amajethics.2023.909.
  • Raz, M., & Edwards, F. (2023). Termination of Parental Rights Is Common and Should Not Be Seen as a Proxy for Child Abuse. Social work, 69(1), 109–112.  https://doi.org/10.1093/sw/swad047
  • Dorfman D, Raz M, Berger Z. Physicians’ Refusal to Wear Masks to Protect Vulnerable Patients—An Ethical Dilemma for the Medical Profession. JAMA Health Forum. 2023;4(11):e233780. doi:10.1001/jamahealthforum.2023.3780 
  • Raz, M., Gupta-Kagan, J., & Asnes, A. G. (2023). Using Child Abuse Specialists to Reduce Unnecessary Child Protective Services Reports and Investigations. JAMA pediatrics, 10.1001/jamapediatrics.2023.3676. Advance online publication.  https://doi.org/10.1001/jamapediatrics.2023.3676
  • Ross, L. F. (2024) Parents Don’t Know Best in the United Kingdom, The American Journal of Bioethics, 24:1, 103-106, DOI: 10.1080/15265161.2024.2279439
  • Stamm, L. & Sanaeikia. Article in Synapsis.
  • Ross, L. F. (2023). The philosophical underpinning of the family for pediatric decision-making. Pediatric Clinics of North America. https://doi.org/10.1016/j.pcl.2023.08.007
  • Shah, A. D., Williams, W. A., 2nd, & Ross, L. F. (2023). How Race, Ethnicity, and Social Determinants of Health Are Reported in Three European Pediatric Journals. The Journal of pediatrics, 259, 113454. https://doi.org/10.1016/j.jpeds.2023.113454
  • Hasser, E., Peshkin, B. N., Hamilton, J. G., Brower, J., Ovadia, H., Friedman Ross, L., Sacca, R., Tarini, B., Domchek, S. M., Vittone, S., Sleiman, M., Jr, Isaacs, C., Knerr, S., Wilfond, B. S., & Tercyak, K. P. (2023). Measuring high-risk parents' opinions about direct-to-consumer genetic testing for adult-onset inherited cancer syndromes in their adolescent and young adult children. Journal of genetic counseling, 32(4), 768–777. https://doi.org/10.1002/jgc4.1685
  • Edwards, F., Fong, K., Copeland, V., Raz, M., & Dettlaff, A. (2023). Administrative burdens in child welfare systems. RSF: The Russell Sage Foundation Journal of the Social Sciences, 9(5), 214–231. https://doi.org/10.7758/rsf.2023.9.5.09
  • Paul, A., Mercado, N., Block, L., DeVoe, B., Richner, N., & Goldberg, G. R. (2023). Visual thinking strategies for interprofessional education and promoting collaborative competencies. The Clinical Teacher. https://doi.org/10.1111/tct.13644
  • Herington, J., McCradden, M. D., Creel, K., Boellaard, R., Jones, E. C., Jha, A. K., Rahmim, A., Scott, P. J. H., Sunderland, J. J., Wahl, R. L., Zuehlsdorff, S., & Saboury, B. (2023). Ethical considerations for Artificial Intelligence in medical imaging: Deployment and governance. Journal of Nuclear Medicine. https://doi.org/10.2967/jnumed.123.266110
  • Edwards, F., Fong, K., Copeland, V., Raz, M., & Dettlaff, A. (2023). Administrative burdens in child welfare systems. RSF: The Russell Sage Foundation Journal of the Social Sciences, 9(5), 214–231. https://doi.org/10.7758/rsf.2023.9.5.09
  • Hasser, E., Peshkin, B. N., Hamilton, J. G., Brower, J., Ovadia, H., Friedman Ross, L., Sacca, R., Tarini, B., Domchek, S. M., Vittone, S., Sleiman, M., Jr, Isaacs, C., Knerr, S., Wilfond, B. S., & Tercyak, K. P. (2023). Measuring high-risk parents' opinions about direct-to-consumer genetic testing for adult-onset inherited cancer syndromes in their adolescent and young adult children. Journal of genetic counseling, 32(4), 768–777. https://doi.org/10.1002/jgc4.1685
  • Eversmann, C., Shah, A., Lazaridis, C., & Ross, L. F. (2023). Coding the dead: Cardiopulmonary resuscitation for organ preservation. AJOB Empirical Bioethics, 14(3), 167–173. https://doi.org/10.1080/23294515.2023.2180106  
  • Paquette, E. D., Ross, L. F., Chavez, J., & Frader, J. E. (2023). Refusals of the Determination of Death by Neurologic Criteria: A Mixed Methods Study of Physician Perspectives on Refusals Cases. Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 10.1097/PCC.0000000000003246. Advance online publication. https://doi.org/10.1097/PCC.0000000000003246
  • Shah, A. D., Williams, W. A., 2nd, & Ross, L. F. (2023). How Race, Ethnicity, and Social Determinants of Health Are Reported in Three European Pediatric Journals. The Journal of pediatrics, 259, 113454. Advance online publication. https://doi.org/10.1016/j.jpeds.2023.113454
  • D'Angio, C. T., & Ross, L. (2023). The Research Protection-Inclusion Dilemma in Pregnancy: Who is Being Protected? Who is Being Included?. The American journal of bioethics : AJOB, 23(6), 103–106. https://doi.org/10.1080/15265161.2023.2201232
  • Gallegos, A. M., Heffner, K. L., Cerulli, C., Luck, P., McGuinness, S., & Pigeon, W. R. (2020). Effects of mindfulness training on posttraumatic stress symptoms from a community-based pilot clinical trial among survivors of intimate partner violence. Psychological Trauma: Theory, Research, Practice, and Policy, 12(8), 859–868 https://pubmed.ncbi.nlm.nih.gov/32969703/
  • Kenny, M., Luck, P., & Koerbel, L. Tending the Field of Mindfulness-Based Programs: The Development of International Integrity Guidelines for Teachers and Teacher Training. Global Advances in Health and Medicine. Feature Article in Special Collection: Intervention Fidelity in Mindfulness-Based Research and Practice. Volume 9. Article first Published May 7, 2020. https://pubmed.ncbi.nlm.nih.gov/32426180/
  • Ed. Cole S, Frankel R, Bird J, Skeff K: Krasner M, Luck P, Mindfulness and the Three Function Approach: Enhancing Meaning, Depth, and Outcomes. (in press 2022)