Publications
Barnett S, Cuculick J, DeWindt L, Matthews K, Sutter E. National Center for Deaf Health Research: CBPR with Deaf Communities. In: Wallerstein N, Duran B, Oetzel J, Minkler M, eds. Community-Based Participatory Research for Health, 3rd ed. San Francisco, CA; 2018. Deaf Health Survey
Barnett SL, Matthews KA, Sutter EJ, DeWindt LA, Pransky JA, O'Hearn AM, David TM, Pollard RQ, Samar VJ, Pearson TA. Collaboration With Deaf Communities to Conduct Accessible Health Surveillance. Am J Prev Med 2017;52(3S3):S250-S254. Deaf Health Survey 2013. Link to American Sign Language video adaptation of this article: ASL Version of AJPM article
Heiman E, Haynes S, McKee M. Sexual health behaviors of Deaf American Sign Language users. Disability and Health Journal 2015; 8: 579-85. Deaf Health Survey 2008
McKee M, McKee K, Winters P, Sutter E, Pearson T. Higher education but not higher income is protective for cardiovascular risk in Deaf American Sign Language users (Article) . Disability and Health Journal 2014;7(1):49-55.
Pollard R, Sutter E, Cerulli.Intimate Partner Violence Reported by Two Samples of Deaf Adults via a Computerized American Sign Language Survey. (Abstract) Journal of Interpersonal Violence 2014:29(5), 948-965.
Samar V, Barnett S, Oyzon E, Mowl C, Sutter E. Modality-Independent Survey Tool (MIST): Imagine the Potential. NTID Research Bulletin Winter 2012; 15(1): 1-4.
Barnett S, Klein JD, Pollard RQ, Samar VJ, Schlehofer D, Starr MJ, Sutter E, Yang H, Pearson TA. (2011). Community participatory research to identify health inequities with deaf sign language users (Full text). American Journal of Public Health, 2011 Dec; 101(12):2235-8. Epub 2011 Oct 20. ASL Video for this publication
McKee MM, Barnett S, Block RC, Pearson TA. (2011). Impact of communication on preventive services among deaf American Sign Language users (Abstract). American Journal of Preventive Medicine 41(1): 75-79.
Graybill P, Aggas J, Dean RK, Demers S, Finigan E, Pollard RQ. (2010). A community participatory approach to adapting survey items for Deaf individuals and American Sign Language (Abstract). Field Methods 2010; 22(4); 429-448.
Deaf Weight Wise
Barnett S, Cuculick J, DeWindt L, Matthews K, Sutter E. National Center for Deaf Health Research: CBPR with Deaf Communities. In: Wallerstein N, Duran B, Oetzel J, Minkler M, eds. Community-Based Participatory Research for Health, 3rd ed. San Francisco, CA; 2018.
Deaf Weight Wise 2.0
Training/Pipeline Programs
Buckley G, Smith S, DeCaro J, Barnett S, Dewhurst S. Building Community for Deaf Scientists. Science. 2017 Jan 20;355(6322):255. doi: 10.1126/science.aal4811.PMC ID: 28104859
Adolescent Cardiovascular Health Literacy Project
Smith, S. R., & Samar, V. J. (2016). Dimensions of deaf/hard-of-hearing and hearing adolescents’ health literacy and health knowledge. Journal of Health Communication, 22(sup2), 141-154. Epub 2016 Aug 22. Click here for the Article.
Smith, S. R., Kushalnagar, P., & Hauser, P. C. (2015). Deaf adolescents’ learning of cardiovascular health information: sources and access challenges.Journal of Deaf Studies and Deaf Education, 20(4), 408-18. doi: 10.1093/deafed/env021.
Cardiovascular Health
Farris RP, Pearson TA, Bryant L, Peters K, Keyserling T, Fitzpatrick A, Neal W. Building capacity for heart disease and stroke prevention research: the cardiovascular health intervention research and translation network. Health Promote Pract. 2008; 9(3):220-7. Abstract
Bryant LL, Chin NP, Cottrell LA, Duckles JM, Fernandez ID, Garces DM, et al. Perceptions of cardiovascular health in underserved communities. Prev Chronic Dis 2010;7(2):A30. Article
Ton TGN, Fogg TT, Fong CT, John C, Li SXL, Marshall JA, Peters KE, Neal W, Pearson TA (2011). Knowledge, perception, and behaviors of relatives of persons with premature heart disease: a systematic literature review (Abstract). Circulation 2011 Aug 23; 124:958-64.
Deaf Ethics
McKee M, Thew D, Schlehofer D. Ethical Issues in Conducting Research with Deaf populations (Article) AJPH 2013 Dec; 103(12):2174-8.
Deaf Moms and Infant Care
Chin NP, Cuculick J, Starr M, Panko T, Widanka H, Dozier A. Deaf mothers and breastfeeding: Do unique features of deaf culture and language support breastfeeding success? (Article) Journal of Human Lactation 2013.
O'Hearn A. (2006). Deaf women's experiences and satisfaction with prenatal care: A comparative study (Article). Family Medicine 2006; 38(10):712-716.
Academic Medicine invited commentary
McKee M, Smith S, Barnett S, Pearson TA. Commentary: What Are the Benefits of Training Deaf and Hard-of-Hearing Doctors? (Article) Academic Medicine 2013;88(2);158-161.
Deaf Strong Hospital
Thew D, Smith S, Chang C, Starr M. The Deaf Strong Hospital Program: a model of diversity and inclusion training for first-year medical students (Abstract). Acad Med 2012; 87(11); 1496-1500.
Mathews JL, Parkhill AL, Schlehofer DA, Starr MJ, Barnett S. (2011). Deaf Strong Hospital: A Role-Reversal Exercise Emphasizing Cultural Competency and Awareness (Full text) American Journal of Pharmaceutical Education, 75(3): 53.
CBPR
McKee M, Thew D, Starr M, Kushalnagar P, Reid J, Graybill P, Velasquez J, Pearson TA. Engaging the deaf sign language community: Lessons from a community-based participatory research center (Article). Progress in Community Health Partnerships. 2012 Fall; 6(3): 321-9.
Deaf Health
Smith S, Chin N. Social determinants of health disparities: deaf communities (Chapter). Chapter in Public Health - Social and Behavioral Health (Maddock J, ed.). InTech. 2012 Mar. ISBN: 979-953-307-499-2.
Barnett S, Cuculick J, DeWindt L, Matthews K, Sutter E. National Center for Deaf Health Research: CBPR with Deaf Communities. In: Wallerstein N, Duran B, Oetzel J, Minkler M, eds. Community-Based Participatory Research for Health, 3rd ed. San Francisco, CA; 2018.
Barnett S, McKee M, Smith SR, Pearson TA. (2011). Deaf sign language users, health inequities and public health: Opportunity for social justice (Full text). Preventing Chronic Disease 8(2). Link to ASL Video for this publication
CHIRTN
McKee M, Schlehofer D, Cuculick J, Starr M, Smith S, Chin N. (2011). Perceptions of cardiovascular health in an underserved community of deaf adults using American Sign Language (Abstract). Disability and Health Journal; 4(3):192-7.
Prevention
Public policy approaches to the prevention of heart disease and stroke. Circulation 2011; 124:2560-71. Available at: http://circ.ahajournals.org/content/124/23/2560.full
General Deaf Health
Hauser P, O’Hearn A, McKee M, Steider A, Thew D. Deaf epistemology: Deafhood and deafness (Abstract). American Annals of the Deaf 2010 Winter; 154(5): 486-492.
Steinberg A, Barnett S, Meador H, Wiggins E, Zazove P. (2006). Healthcare system accessibility: Experiences and perceptions of Deaf people (Article). Journal of General Internal Medicine 2006; 21(3): 260-266.
Barnett S, Katcher L, Katcher M. (2005). Care of the deaf child. In: Pediatrics. L Osborn, TG DeWitt, LR First, J Zenel (Eds.). Philadelphia: Elsevier-Mosby. 2005. (pp. 982-988).
McKee M. End of Life Challenges with Deaf Patients. American Family Physician (should be published now).
McKee M, Hauser P. (2011). Deaf Epistemology: The Juggling of Two Worlds (More Information). Chapter in P. Paul and D. Moores (Eds.), Deaf Epistemologies. Washington, DC: Gallaudet University Press.
Health Literacy
Pollard R, Barnett S. (2009). Health-related vocabulary knowledge among deaf adults (Abstract). Rehabilitation Psychology, 54(2), 182-185.
Pollard RQ, Barnett S. (2005). Deaf Awareness Week health survey results (Article). Deaf Rochester News 2005, 9 (3), 10-11.
Hearing Loss
Pandhi N, Schumacher JR, Barnett S, Smith MA. (2011). Hearing loss and older adults’ perceptions of access to care (Abstract). J Community Health 2011 Oct;36(5):748-55.
Mann J, Zhou L, McKee M, McDermott S. (2007). Children with hearing loss and increased risk of injury (Article). Annals of Family Medicine 2007; 5:528-533.
Barnett S. (2007). Children/families with hearing loss - more research needed (Article). [Invited commentary]. Annals of Family Medicine 2007 (December 24); 5.
References
Pollard R, Dean R, O'Hearn, A, Haynes, S. (2009). Adapting health education material for deaf audiences (Abstract). Rehabilitation Psychology; 54(2), 232-238.