Resources

Lecanemab (Leqembi) was recently given accelerated FDA approval for the treatment of mild cognitive impairment due to Alzheimer’s disease and mild Alzheimer’s disease dementia. This medication is an infusion that will be administered twice monthly in an infusion center and requires regular monitoring for side effects through a series of head MRIs. If you are a patient at the URMC Memory Care Program, please contact your provider if you are interested in finding out if you or your family member qualify for treatment with lecanemab. If you are interested in finding out more about clinical trial opportunities at ADCARE, contact us at 585-602-5200.

Books

There are numerous books available on the history, research, and effects of Alzheimer’s Disease (AD).  Not only can reading these books bring you closer to understanding the disease, studies suggest that reading and keeping your mind active may help protect you from developing AD. So grab a book and start reading!

On Alzheimer’s Disease…

• The Seven Sins of Memory: How the Mind Forgets and Remembers by Daniel Schacter (2001)

Harvard University's Psychology Department Chairman Daniel L. Schacter explains the idea of memory loss in his own words.  This book offers an interesting perspective into the world of memory research while still being accessible to the non-scientific reader.  *Available in eBook

• The Forgetting: Alzheimer’s Portrait of an Epidemic by David Shenk (2003)

In an attempt to uncover the origins of the disease, journalist David Shenk travels through history to explain the clinical findings of German neurologist Dr. Alois Alzheimer.  Shenk’s journey takes him from the modern world of AD, all the way back to the time of Plato, who chronicled his own senility.  *Available in eBook

For the Caregiver…

• The 36 Hour Day by Nancy L. Mace and Peter V. Rabins (1991 & 2001)

Produced by two members of Johns Hopkins University Department of Psychiatry and Behavioral Sciences, this book offers basic facts about dementia and how to deal with the disease as a caregiver.  *Available in eBook

• Learning to Speak Alzheimer’s by Joanne Koenig-Coste (2003)

The author, now a pioneer in methods of caregiving for AD patients, began to develop her approach as she cared for her husband, diagnosed with progressive dementia in his middle years.  Koenig-Coste calls her approach to caregiving “habilitation,” and advocates caregivers joining patients in whatever current sense of place or time makes the patient most comfortable.  *Available in eBook

Personal Accounts of Alzheimer’s Disease…

• Love is Ageless: Stories About Alzheimer’s Disease (2nd Edition) Ed: Jessica Bryan (2002)

Combining various experiences expressed in poetry and prose, editor Jessica Bryan has developed a touching, heartfelt book about how AD affects patients and their loved ones.  *Available in eBook

• Losing My Mind: An Intimate Look at Life with Alzheimer’s by Thomas DeBaggio (2003)

In this unusual memoir, DeBaggio chronicles his own mental deterioration that began with a gradual loss of memory, which lead to a diagnosis of AD at the age of 57.  *Available in eBook

• The Story of My Father by Sue Miller (2003)

In her first nonfiction book, novelist Sue Miller contemplates the nature of memory as she watches her father navigate his last years with AD.  *Available in eBook

• The Family on Beartown Road: A Memoir of Love and Courage by Elizabeth Cohen (2004)

This memoir describes the author’s struggle to balance raising her daughter and caring for her father in the later stages of his AD. The challenges of caring for both provoke surprising and moving comparisons as the author parallels her daughter’s growth with her father’s decline.  *Available in eBook

Fiction Portraying Alzheimer’s Disease…

• Out of Mind by J Bernlef (1989)

This work of fiction depicts the world of Maarten, a Dutch man who endured the Nazi Occupation of Holland and now faces the very different struggle of AD.  Bernlef’s first-person narrative technique gives an insider’s portrayal of the deterioration of a mind.

Please note that this material shall not be used in any manner that may be considered derogatory to the title, content, or authors of the material, or to the corresponding publisher.

Selected Abstracts of Articles from Our Faculty and Staff

Role of citalopram in the treatment of agitation in Alzheimer's disease. (2014)

Effect of citalopram on agitation in Alzheimer disease: the CitAD randomized clinical trial. (2014)

Two phase 3 trials of bapineuzumab in mild-to-moderate Alzheimer's disease. (2014)

Sertraline for the treatment of depression in Alzheimer disease: week-24 outcomes (2010)

Do treatment effects vary among differing baseline depression criteria in depression in Alzheimer's disease study - 2 (DIADS-2) (2010)

The Neuropsychiatric Inventory-Clinician rating scale (NPI-C): reliability and validity of a revised assessment of neuropsychiatric symptoms in dementia (2010)

Predicting conversion from mild cognitive impairment to Alzheimer's disease using neuropsychological tests and multivariate methods (2010)

Diagnosis of Alzheimer's disease using neuropsychological testing improved by multivariate analyses (2010)

Sertraline for the treatment of depression in Alzheimer's disease (2010)

Depression predicts cognitive disorders in older primary care patients (2010)

Trait neuroticism, depression and cognitive function in older primary care patients (2010)

Atomoxetine augmentation of cholinesterase inhibitor therapy in patients with Alzheimer disease: 6-month, randomized, double-blind, placebo-controlled, parallel-trial study (2009)

Meta-analysis of Alzheimer's disease risk with obesity, diabetes, and related disorders (2009)

A randomized, double-blind, placebo-controlled study of aripiprazole for the treatment of psychosis in nursing home patients with Alzheimer disease (2008)

Memantine treatment in patients with mild to moderate Alzheimer's disease already receiving a cholinesterase inhibitor: a randomized, double-blind, placebo-controlled trial (2008)

Cognitive function over time in the Alzheimer's Disease Anti-Inflammatory Prevention Trial (ADAPT): results of a randomized, controlled trial of naproxen and celecoxib (2008)

Memantine in the treatment of mild-to-moderate Alzheimer's disease (2007)

Naproxen and celecoxib do not prevent AD in early results from a randomized controlled trial (2007)

National Institute of Mental Health Clinical Antipsychotic Trials of Intervention Effectiveness - Alzheimer's Disease (CATIE-AD): description of baseline participant characteristics (2007)

Memantine in the treatment of Alzheimer's disease (2006)

Divalproex sodium for the treatment of behavioral problems associated with dementia in the elderly (2006)

Effectiveness of atypical antipsychotic drugs in patients with Alzheimer's disease (2006)

Effects of a gamma-secretase inhibitor in a randomized study of patients with Alzheimer disease (2006)

A reality test: How well do we understand psychosis in Parkinson's disease? (2004)

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