Community Support
The decision about blood and marrow transplant or stem cell rescue is a difficult one for individuals and their families. We are here to help you make that decision by providing information and counseling.
Educational Support
Our center has a library of books and videos so our patients and their families can find out more information about blood and marrow transplantation. Additional resources can be found at:
- BMT InfoNet
- The Leukemia & Lymphoma Society
- American Cancer Society (ACS)
- National Institutes of Health (NIH)
- National Cancer Institute (NCI)
Support Groups
| Group Name | Location | Phone | Notes |
| Family Support Group | Gilda’s Club 225 Alexander St. Rochester, NY |
(585) 423-9700 |
Meets every Wednesday from 6-8 p.m. |
| KATS (Kids Adjusting Through Support) program |
|
(800) 785-2135 |
Meets every Monday from 6:30-8 p.m. |
| Lymphoma and Leukemia Networking Group | Gilda’s Club 225 Alexander St. Rochester, NY |
(585) 423-9700 | Meets on the 4th Wednesday of each month from 6-8 p.m. |
| Multiple Myeloma Support Group | (800) 784-2368 | Meets on the 4th Tuesday of each month from 6:00-7:30 p.m. | |
| Rochester BMT Support Group | Call Michael Ellis at (585) 275-5284 | Meets on the 2nd Wednesday of each month from 7-8:30 p.m. |
Home Care
Many of you will go home with several medications to help control potential infections, electrolyte imbalance, and side effects of treatment. At first, you may take these medications intravenously. These first few weeks at home may be overwhelming for patients and their family members. We can help arrange home care services, such as nursing services, pharmacy vendors, and catheter care supplies. Your home care agency will be determined by your preference, your insurance, and where you live.
Some of the nursing and infusion agencies we most frequently use are: