Resources

• Littlehearts.org
• Adult Congenital Heart Association (ACHA)
• National Heart, Lung, and Blood Institute
• American Heart Association – Congenital Heart Defects
• Centers for Disease Control and Prevention
• Mended Hearts
• Children's Heart Foundation
• Genetic and Rare Diseases Information Center

Transition to Adult Care

• Got Transition®️ - Resources & Research – Youth & Families
• NTACT:C | National Technical Assistance Center on Transition

Heart Failure

• Heart Failure Society of America – Patient Resources

Pregnancy and Heart Disease

• American Heart Association – Pregnancy and Heart Disease
• Society for Maternal-Fetal Medicine – Heart Disease and Pregnancy

Education and Research

• Adult Congenital Heart Disease Accreditation Program​
• National Institute of Child Health and Human Development – Patient Reported Outcomes Measurement Information System (PROMIS)
• Agency for Healthcare Research and Quality – Consumer Assessment of Healthcare Providers and Systems (CAHPS) Surveys