UR Medicine / Neurology / FSHD Research Center / Links Related Links Links relevant to FSHD (FSH dystrophy) and neuromuscular diseases: URMC Neurology LUMC Center for Human and Clinical Genetics Leiden University Muscle Study Group National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members The FSH Society Muscular Dystrophy Association Pacific Northwest Friends of FSH Research FSHD Global Research Foundation How to get involved in Research FSHD Clinical Trial Research Network