Volunteer for a study on FSHD (FSH dystrophy)

This website is intended to provide information regarding FSHD Research. It is not offered as a means to recruit volunteers. For more information on Clinical Trials please click here

How to get involved in FSHD Research.

To learn more about volunteering for a research study at the University of Rochester Medical Center, please contact:

Leann Lewis
Sr. Human Subjects Research Coordinator
Phone:(585) 275-7680
Fax:(585) 276-2492
Email:Leann_lewis@urmc.rochester.edu

If you would like more information about the Fields Center, please email us at:

FSHD-ResearchCenter@urmc.rochester.edu

Due to rules regarding the confidentiality of medical records, we are unable to reply to emails containing confidential information. To protect your privacy, please do not include any personal medical information in your email message. Please include your name, telephone number and email address, and we will contact you. Thank you.