Publications
Publications
- Development of Digital Measures for Nighttime Scratch and Sleep Using Wrist-Worn Wearable Devices
- Digital Technology in Movement Disorders: Updates, Applications, and Challenges
- Remote Smartphone Monitoring of Parkinson’s Disease and Individual Response to Therapy
- GEORGE® – A Pilot Study of a Smartphone Application for Huntington’s Disease
- Deep Phenotyping of Parkinson's Disease
- Using Smartphones and Machine Learning to Quantify Parkinson Disease Severity: The Mobile Parkinson Disease Score
- Recruitment for Remote Decentralized Studies in Parkinson's Disease
- Design of a Virtual Longitudinal Observational Study in Parkinson's disease (AT-HOME PD)
- Feasibility, Reliability, and Value of Remote Video-Based Trial Visits in Parkinson’s Disease
- Video-based Parkinson’s Disease Assessments in a Nationwide Cohort of Fox Insight Participants
- Video Research Visits for Atypical Parkinsonian Syndromes Among Fox Trial Finder Participants
- The New Normal in Clinical Trials: Decentralized Studies
- A Virtual Cohort Study of Individuals at Genetic Risk for Parkinson's Disease: Study Protocol and Design
- Remote Administration of the MDS-UPDRS in the Time of COVID-19 and Beyond
- The New Platforms of Health Care
- Patient Views on Telemedicine for Parkinson Disease
- The Parkinson's Disease E-diary: Developing a Clinical and Research Tool for the Digital Age
- Global, Regional, and National Burden of Parkinson's Disease, 1990-2016: A Systematic Analysis for the Global Burden of Disease Study 2016
- Multiple Wearable Sensors in Parkinson and Huntington Disease Individuals: A Pilot Study in Clinic and at Home
- Developing Better Digital Health Measures of Parkinson's Disease Using Free Living Data and a Crowdsourced Data Analysis Challenge
- A Disease Progression Model to Quantify the Nonmotor Symptoms of Parkinson's Disease in Participants With Leucine-Rich Repeat Kinase 2 Mutation
- Development of a Disease Progression Model for Leucine-Rich Repeat Kinase 2 in Parkinson's Disease to Inform Clinical Trial Designs
- Large-Scale Identification of Clinical and Genetic Predictors of Motor Progression in Patients With Newly Diagnosed Parkinson's Disease: A Longitudinal Cohort Study and Validation
- A Review of Disease Progression Models of Parkinson's Disease and Applications in Clinical Trials
- Precompetitive Data Sharing as a Catalyst to Address Unmet Needs in Parkinson's Disease
- Prognostic Predictors Relevant to End-of-Life Palliative Care in Parkinson's Disease and Related Disorders: A Systematic Review
- Palliative Care and Parkinson's Disease: Time to Move Beyond Cancer
- Palliative Care in Movement Disorders: An Evolving Field
- Joy, Suffering, and the Goals of Medicine
- Comparison of Integrated Outpatient Palliative Care With Standard Care in Patients With Parkinson Disease and Related Disorders: A Randomized Clinical Trial
- Symptom Burden Among Individuals With Parkinson Disease: A National Survey
- Factors Associated With Lumbar Puncture Performance in Zambia
- A Qualitative Study of Patient, Caregiver, Doctor and Nurse Views of Factors Influencing Lumbar Puncture Uptake in Zambia
- Lumbar Puncture-Related Knowledge, Attitudes, and Practices Among Patients, Caregivers, Doctors, and Nurses in Zambia
- A Clinical Trial of Enteral Levetiracetam for Acute Seizures in Pediatric Cerebral Malaria
- Advancing Health Equity Through Cross-Cutting Approaches to Health-Related Stigma
- Nervous System Disorders Across the Life Course in Resource-Limited Settings
- Mortality & Recurrent Seizure Risk After New-Onset Seizure in HIV-Positive Zambian Adults
- The Spinal Muscular Atrophy Health Index: A Novel Outcome for Measuring How a Patient Feels and Functions
- Mexiletine in Myotonic Dystrophy Type-1: A Randomized, Double-Blind, Placebo-Controlled Trial
- Patient-Reported Impact of Symptoms in Huntington disease: PRISM-HD
- Myotonic Dystrophy Patient Preferences in Patient-Reported Outcome Measures
- Patient Reported Impact of Symptoms in Spinal Muscular Atrophy (PRISM-SMA)
- The Myotonic Dystrophy Health Index: Italian Validation of a Disease-Specific Outcome Measure
- Myotonic Dystrophy Health Index: Correlations With Clinical Tests and Patient Function
- Patient-Reported Impact of Symptoms in Myotonic Dystrophy Type 2 (PRISM-2)
- Myotonic Dystrophy Health Index: Initial Evaluation of a Disease‐Specific Outcome Measure
- Patient-Reported Impact of Symptoms in Myotonic Dystrophy Type 1 (PRISM-1)
- Patient-Customized Oligonucleotide Therapy for a Rare Genetic Disease
- A Novel, Hybrid, Single- and Multi-Site Clinical Trial Design for CLN3 Disease, an Ultra-Rare Lysosomal Storage Disorder
- Short-Term Administration of Mycophenolate Is Well-Tolerated in CLN3 Disease (Juvenile Neuronal Ceroid Lipofuscinosis)
- The Care Continuum: An Evolving Model for Care and Research in Rare Diseases
- Efficacy of Nilotinib in Patients With Moderately Advanced Parkinson Disease: A Randomized Clinical Trial
- Safety of Converting From Tetrabenazine to Deutetrabenazine for the Treatment of Chorea
- Effect of Deutetrabenazine on Chorea Among Patients With Huntington Disease: A Randomized Clinical Trial
- A Controlled, Randomized, Delayed-Start Study of Rasagiline in Early Parkinson Disease
- Effects of Tocopherol and Deprenyl on the Progression of Disability in Early Parkinson's Disease