Cystic Fibrosis Center
Accredited by the Cystic Fibrosis Foundation (CFF), we are a premiere Cystic Fibrosis Center serving Upstate New York. Our Center adheres to the stringent standards set forth by the CF Foundation using approved guidelines resulting in an appropriate management of patients with CF. Our sweat test laboratory uses only CFF-approved techniques, which result in accurate diagnoses and quality ongoing care of patients of all ages.
At the Golisano Children's Hospital, we incorporate a team approach. Our pulmonologists are supported by a core team of dietitians, social workers, nurses, and respiratory therapists. We also have available the consultative expertise of gastroenterologists, surgeons, psychiatrists, radiologists, and other specialists needed in the evaluation of new patients and the ongoing management of CF.
Download and complete the Pre-Clinic Questionnaire for the Pediatric CF Clinic
National Involvement
Our national involvement strengthens our clinical and research position by keeping us abreast of rising issues in the study, education, and treatment of cystic fibrosis. Our faculty and nurses have served in an advisory capacity to the Cystic Fibrosis Foundation in several areas, including Quality Improvement, the Patient and Family Education Committee, and the Program Planning for the North American CF Conference. Through the Epidemiological Study of CF, we have participated in data analysis and the publication of results addressing questions to improve the quality of specific care initiatives in cystic fibrosis, keeping us on the forefront for new therapies. We are also active participants in the North American CF Conference, an annual professional conference of clinical and basic science research professionals sponsored by the Cystic Fibrosis Foundation.
Community Outreach and Professional Development
We are fortunate to have the Kit Taylor Memorial Lectureship at the Golisano Children's Hospital, established in 1982. The annual two-day event is an opportunity for parents, trainees, nurses, physicians and community medical professionals to learn from renown national experts in CF. An evening is devoted to parents, patients, and interested community members, and the lecture is also presented at Pediatric Grand Rounds. Guest speakers have presented such topics as latest improvements in care, newborn screening, new therapies, genetics, and lung transplants.
Part of Strong Memorial Hospital
44th Annual Kit Taylor Memorial Lectureship
Dr. Paul McCray presented “Gene therapy strategies for the prevention and treatment of cystic fibrosis lung disease” on April 16, 2024.
Sponsored by: The Kit Taylor Memorial Fund and Department of Pediatrics, University of Rochester Medical Center. For more information, contact the Division of Pediatric Pulmonology at (585) 275-2464.