Educational and Support Resources
Educational and Support Resources
Cystic Fibrosis Foundation
- Cystic Fibrosis Foundation - The Cystic Fibrosis Foundation offers a wealth of information about the disease, available treatments, on-going research and donation opportunities.
- Western New York Chapter
Cystic Fibrosis Infection Control
Cystic Fibrosis Nutrition
- Nutrition for Your Child Birth to One Year
- Nutrition for Your Child One to Three Years
- Nutrition for Your Child Four to Seven Years
- Nutrition for Teens with CF
- Nutrition for the Adult
- Encouraging Healthy Eating
- Bone Health and CF
- Pancreatic Enzyme Replacement
- School, Enzymes, and Sports
- Snack Ideas
- Enzyme Card
- GI and Malabsorption Tracker
Cystic Fibrosis Pulmonary Treatments
- Life with CF, 0-12months
- Life with CF, 1-3 years
- Life with CF, 4-7 years
- Life with CF, 8 and older
- Patient and Family Exercise
- Exercise in CF
- Airway Clearance Techniques
- Common Inhaled Medications
- Nebulizer Treatments
- Cleaning of Nebulizers
Cystic Fibrosis Networking & News
Financial, Legal, Insurance ...
Community Resources
- Cystic Fibrosis Family Connection (CFFC)
- Mental Health Association - For patients with chronic illness AND a mental health concern; parents can call themselves.
- Crisis Nursery of Greater Rochester - Provides a safe, nurturing environment for children from birth to age 12 whose families are in crisis. For up to 72 hours, children can live at the nursery, cared for by trained staff.