Resources- Online

Disease Education

Parkinson’s Disease

• Parkinson’s Foundation (https://www.parkinson.org/)
• Davis Finney Foundation (https://davisphinneyfoundation.org/)
• Michael J Fox Foundation (https://www.michaeljfox.org/)

Huntington’s Disease

• Huntington’s Disease Society of America (https://hdsa.org/)

Alzheimer’s Dementia

• Alzheimer’s Association (https://www.alz.org/)

Multiple Sclerosis

• National Multiple Sclerosis Society (https://www.nationalmssociety.org/)

Neuropalliative Care

• International Neuropalliative Care Society (https://www.inpcs.org/)

Mindfulness

• Apps: Calm, Aura, Stop, Breathe & Think, Headspace, Glo, The Chopra Center, and Insight Timer
• Center for Mindful Self-Compassion (https://centerformsc.org/) offers resources related to self-compassion.
• Center for Mindfulness in Medicine, Health Care, and Society (http://www.umassmed.edu/cfm/) University of Massachusetts Medical Center.
• Atlas of Emotions (http://www.atlasofemotions.org) 
• Mindful (https://www.mindful.org/)
• San Francisco Zen Center (http://sfzc.org) Offers online training in meditation.
• UCLA Mindfulness Awareness Research Center (https://www.uclahealth.org/programs/marc) Offers many free resources including guided meditations in English and Spanish and a mindfulness ap for phones.
• Tara Brach (https://www.tarabrach.com/guided-meditations/) offers free online meditations.
• Sounds True (https://content.soundstrue.com/mbsr-online-course-video) Cost is about $300. This is a self-paced video course.
• Ignatian Examen (http://www.ignatianspirituality.com) is a technique of prayerful reflection on the events of the day.
• Yale Center for Emotional Intelligence (http://ei.yale.edu/what-is-gratitude/)  Explanation of what a gratitude practice is.

Planning for the future: Advanced Care Planning and Living Wills

• Choosing a health care proxy:  https://www.health.ny.gov/professionals/patients/health_care_proxy/
• Medical Orders for Life-Sustaining Treatment (MOLST): https://www.health.ny.gov/professionals/patients/patient_rights/molst
• Five Wishes: https://www.fivewishes.org/ A complete approach to discussing and documenting your care goals.
• The Conversation Project: https://theconversationproject.org/ Provides guidance for families to talk about living wills and advanced care planning.
• Prepare for your care: https://prepareforyourcare.org/en/welcome Offers step-by-step guidance for advanced care planning.
• Aging with Dignity:  https://agingwithdignity.org/ This is a national nonprofit agency with a mission to “affirm and safeguard the human dignity of individuals as they age, and to promote better care for those near the end of life.”
• Compassion and Choices: https://www.compassionandchoices.org/ Compassion & Choices improves care, expands options and empowers everyone to chart their end-of-life journey.

Healthy Eating

• American Heart Association: https://www.heart.org/en/healthy-living/healthy-eating
• Psychology Today: https://www.psychologytoday.com/us/blog/mindful-eating/200902/mindful-eating
• Harvard Health: https://www.hsph.harvard.edu/nutritionsource/mindful-eating/

Misc. Services and Supports

• Power for Parkinson’s disease (https://www.powerforparkinsons.org/) Free online fitness and speech therapy courses specialized for persons with Parkinson’s disease
• Stress Management:  American Heart Association (https://www.heart.org/en/healthy-living/healthy-lifestyle/stress-management)
• Building resilience – American Psychological Association (https://www.apa.org/topics/resilience)
• HeartMath (https://www.heartmath.org/) Has developed scientifically validated tools to help people reduce and avoid stress while experiencing increased peace, satisfaction, and enjoyment.
• Relish (https://relish-life.com/us) Activities for people with dementia.
• Apps to stimulate memory:
  • Luminosity
  • Elevate
  • Peak
  • Left vs. Right: Brain Games
  • Train Your Brain- Memory
  • Onnect
  • Sodoku applications (there are many)
  • Neuroracer
  • Mindmate

Pain and meditation

• The Curious Frugal https://thecuriousfrugal.com/meditation-for-pain  One meditation is led by Jon Kabat-Zinn
• The Pain Doctor http://paindoctor.com/meditation-for-chronic-pain
• Yoga Journal www.yogajournal.com/meditation/meditation-for-an-aching-body
• Mindful https://www.mindful.org/chronic-pain-and-meditation Article on research and case studies supporting the use of meditation for chronic pain.

Books, journals, CD’s, streaming

• John Kabat-Zinn, Mindfulness Meditation for Pain Relief:  Guided Practices for Reclaiming Your Body (book, audio CD).
• Vidamala Burch and Danny Penman, You Are Not Your Pain: Using Mindfulness to Relieve Pain, Reduce Stress, and Restore Well-Being (book)
• Vidamala Burch, Mindfulness Meditation for Pain Relief, (MP3)
• Tony Greco, Meditations for Pain Recovery (book)
• Gael Chirella, Meditations for Pain (streaming)

You can find more by searching Mindfulness +meditation on online retailers or at your local library.