UR Medicine / Neurology / Our Divisions / Neuropalliative Care / Resources- Online Resources- Online Disease Education Parkinson’s Disease Parkinson’s Foundation (https://www.parkinson.org/) Davis Finney Foundation (https://davisphinneyfoundation.org/) Michael J Fox Foundation (https://www.michaeljfox.org/) Huntington’s Disease Huntington’s Disease Society of America (https://hdsa.org/) Alzheimer’s Dementia Alzheimer’s Association (https://www.alz.org/) Multiple Sclerosis National Multiple Sclerosis Society (https://www.nationalmssociety.org/) Neuropalliative Care International Neuropalliative Care Society (https://www.inpcs.org/) Mindfulness Apps: Calm, Aura, Stop, Breathe & Think, Headspace, Glo, The Chopra Center, and Insight Timer Center for Mindful Self-Compassion (https://centerformsc.org/) offers resources related to self-compassion. Center for Mindfulness in Medicine, Health Care, and Society (http://www.umassmed.edu/cfm/) University of Massachusetts Medical Center. Atlas of Emotions (http://www.atlasofemotions.org) Mindful (https://www.mindful.org/) San Francisco Zen Center (http://sfzc.org) Offers online training in meditation. UCLA Mindfulness Awareness Research Center (https://www.uclahealth.org/programs/marc) Offers many free resources including guided meditations in English and Spanish and a mindfulness ap for phones. Tara Brach (https://www.tarabrach.com/guided-meditations/) offers free online meditations. Sounds True (https://content.soundstrue.com/mbsr-online-course-video) Cost is about $300. This is a self-paced video course. Ignatian Examen (http://www.ignatianspirituality.com) is a technique of prayerful reflection on the events of the day. Yale Center for Emotional Intelligence (http://ei.yale.edu/what-is-gratitude/) Explanation of what a gratitude practice is. Planning for the future: Advanced Care Planning and Living Wills Choosing a health care proxy: https://www.health.ny.gov/professionals/patients/health_care_proxy/ Medical Orders for Life-Sustaining Treatment (MOLST): https://www.health.ny.gov/professionals/patients/patient_rights/molst Five Wishes: https://www.fivewishes.org/ A complete approach to discussing and documenting your care goals. The Conversation Project: https://theconversationproject.org/ Provides guidance for families to talk about living wills and advanced care planning. Prepare for your care: https://prepareforyourcare.org/en/welcome Offers step-by-step guidance for advanced care planning. Aging with Dignity: https://agingwithdignity.org/ This is a national nonprofit agency with a mission to “affirm and safeguard the human dignity of individuals as they age, and to promote better care for those near the end of life.” Compassion and Choices: https://www.compassionandchoices.org/ Compassion & Choices improves care, expands options and empowers everyone to chart their end-of-life journey. Healthy Eating American Heart Association: https://www.heart.org/en/healthy-living/healthy-eating Psychology Today: https://www.psychologytoday.com/us/blog/mindful-eating/200902/mindful-eating Harvard Health: https://www.hsph.harvard.edu/nutritionsource/mindful-eating/ Misc. Services and Supports Power for Parkinson’s disease (https://www.powerforparkinsons.org/) Free online fitness and speech therapy courses specialized for persons with Parkinson’s disease Stress Management: American Heart Association (https://www.heart.org/en/healthy-living/healthy-lifestyle/stress-management) Building resilience – American Psychological Association (https://www.apa.org/topics/resilience) HeartMath (https://www.heartmath.org/) Has developed scientifically validated tools to help people reduce and avoid stress while experiencing increased peace, satisfaction, and enjoyment. Relish (https://relish-life.com/us) Activities for people with dementia. Apps to stimulate memory: Luminosity Elevate Peak Left vs. Right: Brain Games Train Your Brain- Memory Onnect Sodoku applications (there are many) Neuroracer Mindmate Pain and meditation The Curious Frugal https://thecuriousfrugal.com/meditation-for-pain One meditation is led by Jon Kabat-Zinn The Pain Doctor http://paindoctor.com/meditation-for-chronic-pain Yoga Journal www.yogajournal.com/meditation/meditation-for-an-aching-body Mindful https://www.mindful.org/chronic-pain-and-meditation Article on research and case studies supporting the use of meditation for chronic pain. Books, journals, CD’s, streaming John Kabat-Zinn, Mindfulness Meditation for Pain Relief: Guided Practices for Reclaiming Your Body (book, audio CD). Vidamala Burch and Danny Penman, You Are Not Your Pain: Using Mindfulness to Relieve Pain, Reduce Stress, and Restore Well-Being (book) Vidamala Burch, Mindfulness Meditation for Pain Relief, (MP3) Tony Greco, Meditations for Pain Recovery (book) Gael Chirella, Meditations for Pain (streaming) You can find more by searching Mindfulness +meditation on online retailers or at your local library.