Resources

University of Rochester Resources

• Golisano Children’s Hospital at Strong Cystic Fibrosis Center
• Pediatric Cleft and Craniofacial Center
• Pediatric Genetics

Resources for Common Genetic Diagnoses

• Congenital heart defects
• Cystic Fibrosis Foundation
• Genetic Information Nondiscrimination Act (GINA)

• Hemoglobin disorders
  • Sickle cell disease
  • Thalassemia
• National Down Syndrome Society

• SOFT (Support Organization for Trisomy 18, 13 and Related Disorders)
• Spina Bifida