Golisano Children's Hospital / Palliative Care / Resources Resources Living with Chronic and Life Altering Illnesses High Risk Pregnancy and Loss Bereavement Support Living with a Chronic and Life Altering Illnesses Helpful Sites HealthyChildren: Living with a Chronic Illness or Disability Needymeds: Financial Resources and Support Kidshealth: Balancing Academics and Serious Illness Mended Hearts for Cardiac Families SuperSibs Local Groups and Organizations CompassionNet UR Medicine Homecare Caring Bridge Make a Wish CURE Childhood Cancer Camp Good Days 13-30 Cancer Connect Books Kids The Hospital Hoppities (Charlotte Hartley-Jones) The Perfect Shelter (Clare Helen Walsh) When Someone Has a Very Serious Illness: Children Can Learn to Cope with Loss and Change – Interactive Journal for 6-12 year olds – also available in Spanish (Marge Heegaard) Adults Shelter from the Storm: Caring for a Child with a Life-Threatening Condition (Joanne Hilden & Karen Lindsey) Armfuls of Time (Barbara Sourkes) High Risk Pregnancy and Loss Top Helpful Sites SHARE Perinatal Hospice & Palliative Care Now I Lay Me Down to Sleep Kids Health for Preemies SOFT (Trisomy Support) Star Legacy Foundation Local Groups and Organizations SAIL: (Strong Arms in Infant Loss) Contact Liz Conrow at (585) 275-8304 or by email at Elizabeth_Conrow@urmc.rochester.edu for meeting information. Forget Me Not: Contact: Kim Doolittle at (585) 454-9299, or by email at forgetmenotrochester@gmail.com Books Kids No Bigger Than My Teddy Bear (Valerie Panknow) Adults A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life is Expected to be Brief (Amy Kuebelbeck) Preemies - Second Edition: The Essential Guide for Parents of Premature Babies (Dana Wechsler Linden) Waiting for Gabriel: A Story of Cherishing a Baby’s Brief Life (Amy Kuebelbeck) Empty Cradle, Broken Heart: Surviving the Death of Your Baby (Deborah Davis) Bereavement Support Top Helpful Sites Golosano Children's Hospital Hospital Bereavement Website Guide to Grieving Support Resources What’s Your Grief A Bed for My Heart: Dear Newly Bereaved Parent Local Groups and Organizations Compassionate Friends Mended Hearts Angels Rise Up Rochester Dreams from Drake Books Kids The Invisible String & The Invisible String Workbook (Patricia Karst) I miss you: A First Look at Death (Pat Thomas) I will always Love You: A Journey from Grief and Loss to Hope and Love (Melissa Lyons) The Goodbye Book (Todd Parr) The Memory Box: A Book About Grief (Joanna Rowland) Tear Soup: A Recipe for Healing After Loss (Pat Schwiebert) Lifetimes: A Beautiful Way to Explain Death to Children (Bryan Mellonie) Grieving for the Sibling You Lost: A Teens Guide to Coping With Grief and Finding Meaning After Loss (Erica Goldblatt Hyatt) Fire in My Heart, Ice in My Veins: A Journal for Teenagers Experiencing Loss (Enid Samuel Traisman) Adults Healing a Parent’s Grieving Heart: 100 Practical Ideas After Your Child Dies (Alan Wolfelt) It’s Ok that You’re Not OK (Megan Devine) Permission to Mourn (Tom Zuba)