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Resources

Living with a Chronic and Life Altering Illnesses

Helpful Sites

Local Groups and Organizations

Books

Kids

  • The Hospital Hoppities (Charlotte Hartley-Jones)
  • The Perfect Shelter (Clare Helen Walsh)
  • When Someone Has a Very Serious Illness: Children Can Learn to Cope with Loss and Change – Interactive Journal for 6-12 year olds – also available in Spanish (Marge Heegaard)

Adults

  • Shelter from the Storm: Caring for a Child with a Life-Threatening Condition (Joanne Hilden & Karen Lindsey)
  • Armfuls of Time (Barbara Sourkes)

 

High Risk Pregnancy and Loss

Helpful Sites

Local Groups and Organizations

Books

Kids

  • No Bigger Than My Teddy Bear (Valerie Panknow)


Adults

  • A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life is Expected to be Brief (Amy Kuebelbeck)
  • Preemies - Second Edition: The Essential Guide for Parents of Premature Babies (Dana Wechsler Linden)
  • Waiting for Gabriel: A Story of Cherishing a Baby’s Brief Life (Amy Kuebelbeck)
  • Empty Cradle, Broken Heart: Surviving the Death of Your Baby (Deborah Davis)

Bereavement Support

Helpful Sites

Local Groups and Organizations

Books

Kids

  • The Invisible String & The Invisible String Workbook (Patricia Karst)
  • I miss you: A First Look at Death (Pat Thomas)
  • I will always Love You: A Journey from Grief and Loss to Hope and Love (Melissa Lyons)
  • The Goodbye Book (Todd Parr)
  • The Memory Box: A Book About Grief (Joanna Rowland)
  • Tear Soup: A Recipe for Healing After Loss (Pat Schwiebert)
  • Lifetimes: A Beautiful Way to Explain Death to Children (Bryan Mellonie)
  • Grieving for the Sibling You Lost: A Teens Guide to Coping With Grief and Finding Meaning After Loss (Erica Goldblatt Hyatt)
  • Fire in My Heart, Ice in My Veins: A Journal for Teenagers Experiencing Loss (Enid Samuel Traisman)


Adults

  • Healing a Parent’s Grieving Heart: 100 Practical Ideas After Your Child Dies (Alan Wolfelt)
  • It’s Ok that You’re Not OK (Megan Devine)
  • Permission to Mourn (Tom Zuba)