Publications
Publications
- Wellness Gone Awry: How Helpful Hints Might Be Harmful.; Journal of general internal medicine; Vol 37(12), pp. 3166-3167. 2022 Apr 27.
- A National Survey to Guide Pediatric Curricula for Hospice and Palliative Medicine Fellows.; Journal of Pain and Symptom Management; Vol 64(3), pp. 165-171. 2022 Jan 01.
- Myeloablative Carboplatin and Thiotepa With Autologous Stem Cell Rescue for Nonmedulloblastoma High-risk CNS Tumors in Young Children.; Journal of pediatric hematology/oncology. 2021 May 18.
- Life-limiting fetal conditions and pregnancy continuation: parental decision-making processes.; BMJ Supportive & Palliative Care; Vol 0, pp. 1-7. 2021 Jan 01.
- 'Creating a safe space': how perinatal palliative care coordinators navigate care and support for families.; International Journal of Palliative Nursing; Vol 27(8), pp. 386-400. 2021 Jan 01.
- Am I Racist?; The New England journal of medicine; Vol 383(12), pp. e80. 2020 Sep 01.
- Results of a pre-implementation analysis of Ethiopia's National Pediatric Cancer Registry.; Journal of oncology pharmacy practice : official publication of the International Society of Oncology Pharmacy Practitioners; Vol 27(8), pp. 1940-1947. 2020 Jan 20.
- Training pediatric hematologist/oncologists for capacity building in Ethiopia.; Pediatric blood & cancer; Vol 67(12), pp. e28760. 2020 Jan 13.
- Pediatric and adult H3 K27M-mutant diffuse midline glioma treated with the selective DRD2 antagonist ONC201.; Journal of neuro-oncology; Vol 145(1), pp. 97-105. 2019 Aug 27.
- Costs of Care and Location of Death in Community-Based Pediatric Palliative Care.; Journal of palliative medicine; Vol 22(5), pp. 517-521. 2019 Feb 07.
- Pre-implementation assessment of a national Ethiopian pediatric cancer registry.; Blood advances; Vol 3(Suppl 1), pp. 16-19. 2019 Jan 06.
- African American and Latino Bereaved Parent Health Outcomes after Receiving Perinatal Palliative Care.; Applied Nursing Research; Vol 50. 2019 Jan 01.
- An Integrated, Developmental Four-Year Medical School Curriculum in Palliative Care: A Longitudinal Content Evaluation Based on National Norms.; Journal of Palliative Medicine; Vol 21(9), pp. 1221-1233. 2018 Jan 01.
- Successful reduced-intensity conditioning hematopoietic stem cell transplantation for paroxysmal nocturnal hemoglobinuria with aplastic anemia in two children.; Pediatric blood & cancer. 2018 May 03.
- The Long Ride Home.; The New England journal of medicine; Vol 378(17), pp. 1569-1571. 2018 Apr 26.
- Parental coping in the context of having a child who is facing death: A theoretical framework.; Palliative & supportive care; Vol 16(4), pp. 432-441. 2017 Jul 13.
- . "I'm ready to die, so what options do I have?" Exploring Palliative Sedation and Voluntary Stopping Eating and Drinking as Last Resort Options.; The Maryland Medical Journal; Vol 17(4), pp. 24-26. 2017 Jan 01.
- 'Love is a Choice:' Couple Responses to Continuing Pregnancy with a Lethal Fetal Diagnosis.; Illness, Crisis and Loss; Vol 26(1), pp. 5-22. 2017 Jan 01.
- Teaching the Art of Difficult Family Conversations. Journal of Pain and Symptom Management.; Journal of Pain and Symptom Management; Vol 53(2), pp. 157-161. 2017 Jan 01.
- A Survey of Perinatal Palliative Care Programs in the United States: Structure, Processes, and Outcomes.; Journal of Palliative Medicine; Vol 19(10), pp. 1080-1086. 2016 Jan 01.
- Talking to Children With Cancer: Sometimes Less Is More.; Journal of clinical oncology : official journal of the American Society of Clinical Oncology; Vol 34(28), pp. 3477-9. 2016 Aug 09.
- Feasibility of early palliative care consultation for children with high risk malignancies.; Pediatric Blood and Cancer; Vol 63(8), pp. 1419-1422. 2016 Jan 01.
- 'Have No Regrets': Parents' Experiences and Developmental Tasks in Pregnancy with a Lethal Fetal Diagnosis; Social Science & Medicine; Vol 154, pp. 100-109. 2016 Jan 01.
- Art of Oncology: Talking to children with cancer: sometimes less is more; Journal Clinical Oncology. 2016 Jan 01.
- Social competence in childhood brain tumor survivors: Feasibility and preliminary outcomes of peer-mediated intervention.; Journal of Developmental & Behavioral Pediatrics; Vol 37(6), pp. 475-482. 2016 Jan 01.
- On Children, Blood and Cancer (commentary); Pediatric Blood and Cancer. 2016 Jan 01.
- Neurocognitive Changes after Sustained Ketamine Administration in Children with Chronic Pain.; J Palliative Care & Medicine; Vol 5:2. 2015 Jan 01.
- Parents' Interactions with Sonographers During Pregnancy with Lethal Fetal Diagnosis.; Global Qualitative Nursing Research. 2015 Jan 01.
- Provision of services in perinatal palliative care: A multicenter survey in the United States.; Journal of Palliative Medicine; Vol 19(3), pp. 279-285. 2015 Jan 01.
- Phase 2 study of safety and efficacy of nimotuzumab in pediatric patients with progressive diffuse intrinsic pontine glioma.; Neuro-oncology; Vol 16(11), pp. 1554-9. 2014 May 20.
- End-of-life care for children enrolled in a community-based pediatric palliative care program.; Journal of palliative medicine; Vol 17(5). 2014 May.
- Correlation between progression free survival and dynamic susceptibility contrast MRI perfusion in WHO grade III glioma subtypes.; Journal of neuro-oncology; Vol 116(2). 2014 Jan.
- Diffuse intrinsic pontine gliomas: treatments and controversies.; Advances in cancer research; Vol 121, pp. 235-259. 2014.
- 'Air Hunger.' Essay in On Being a Doctor series.; Annals of Internal Medicine; Vol 161(7). 2014 Jan 01.
- Differential expression of somatostatin receptors, P44/42 MAPK, and mTOR activation in medulloblastomas and primitive neuroectodermal tumors.; Applied immunohistochemistry & molecular morphology : AIMM / official publication of the Society for Applied Immunohistochemistry; Vol 21(6). 2013 Dec.
- What would you do if it were your kid?; The New England journal of medicine; Vol 369(14), pp. 1291-3. 2013 Oct 03.
- Ketamine for pain in adults and children with cancer: a systematic review and synthesis of the literature.; Pain medicine (Malden, Mass.); Vol 14(10). 2013 Oct.
- Oral ketamine for children with chronic pain: a pilot phase 1 study.; The Journal of pediatrics; Vol 163(1). 2013 Jul.
- Perinatal Palliative Care and Hospice; Peri-Facts eJournal. Ed. James Woods MD. 2013 Jan 01.
- Primary Ewing sarcoma of the anterior mandible localized to the midline.; Oral surgery, oral medicine, oral pathology and oral radiology; Vol 115(6), pp. e46-50. 2013 Feb 01.
- Disseminated Intracranial Ewing's Sarcoma in an Adult: A Rare and Difficult Diagnosis.; Case reports in oncology; Vol 5(2), pp. 325-31. 2012 Jun 21.
- Spurious progression in pediatric brain tumors.; Journal of neuro-oncology; Vol 107(3). 2012 May.
- Incidental brain lesions in children: to treat or not to treat?; Journal of neuro-oncology; Vol 106(3). 2012 Feb.
- 'My Baby is a Person.' Family Experiences with Life-threatening Fetal Diagnosis.; Journal of Palliative Medicine; Vol 14(12), pp. 1302-1308. 2011 Jan 01.
- Two hats.; Journal of palliative medicine; Vol 13(12), pp. 1488-9. 2010 Dec.
- Patterns and timing of recurrence after temozolomide-based chemoradiation for glioblastoma.; International journal of radiation oncology, biology, physics; Vol 78(4). 2010 Nov 15.
- Living in the Moment. Art of Oncology - when the tumor is not the target.; J Clin Onc; Vol 31, pp. 4778-9. 2010 Jan 01.
- Changes in relative cerebral blood volume 1 month after radiation-temozolomide therapy can help predict overall survival in patients with glioblastoma.; Radiology; Vol 256(2). 2010 Aug.
- Primary spinal cord glioma: a Surveillance, Epidemiology, and End Results database study.; Journal of neuro-oncology; Vol 98(1). 2010 May.
- Withholding information from patients--when less is more.; The New England journal of medicine; Vol 362(5). 2010 Feb 04.
- Can literature enhance oncology training? A pilot humanities curriculum.; Journal of clinical oncology : official journal of the American Society of Clinical Oncology; Vol 29(4), pp. 468-71. 2010 Jan 28.
- Capzb2 protein expression in the brains of patients diagnosed with Alzheimer's disease and Huntington's disease.; Journal of Translational Neuroscience; Vol 1(1), pp. 55-58. 2010 Jan 01.
- Short Report: Coliform and Escherichia coli Contamination of Desserts Served In Public Restaurants from Guadalajara, Mexico, and Houston; The American Journal of Tropical Medicine and Hygiene; Vol 80(4), pp. 606-608. 2009 Jan 01.
- Stereotactic radiosurgery for glioblastoma: retrospective analysis.; Radiation oncology (London, England); Vol 4. 2009.
- Disruption of neural progenitors along the ventricular and subventricular zones in periventricular heterotopias.; Human Molecular Genetics 2009;18:497-516.. 2009 Jan 01.
- Glioblastoma multiforme in skin: a report of 2 cases and review of the literature.; The American Journal of dermatopathology; Vol 30(4). 2008 Aug.
- Treatment of children with diffuse intrinsic brain stem glioma with radiotherapy, vincristine and oral VP-16: a Children's Oncology Group phase II study.; Pediatric blood & cancer; Vol 50(2), pp. 227-30. 2008 Feb.
- Evaluation of molecular genetic alterations associated with tumor progression in a case of gliomatosis cerebri.; Journal of neuro-oncology; Vol 82(1), pp. 23-7. 2006 Sep 06.
- Temozolomide and oral VP-16 for children and young adults with recurrent or treatment-induced malignant gliomas.; Pediatric blood & cancer; Vol 47(1), pp. 37-41. 2006 Jul.
- Primary intracranial atypical teratoid/rhabdoid tumors of infancy and childhood: MRI features and patient outcomes.; AJNR. American journal of neuroradiology; Vol 27(5). 2006 May.
- Etoposide, vincristine, and cyclosporin A with standard-dose radiation therapy in newly diagnosed diffuse intrinsic brainstem gliomas: a pediatric oncology group phase I study.; Pediatric blood & cancer; Vol 45(5), pp. 644-8. 2005 Oct 15.
- CXC chemokine expression and synthesis in skeletal muscle during ischemia/reperfusion; Journal of Vascular Surgery; Vol 42(3). 2005 Jan 01.
- Is routine chest radiography necessary for the initial evaluation of fever in neutropenic children with cancer?; Pediatric blood & cancer; Vol 43(7), pp. 715-7. 2004 Dec.
- Choroid plexus carcinomas in children: MRI features and patient outcomes.; Neuroradiology; Vol 46(9). 2004 Sep.
- Desmoplastic small round cell tumor.; Pediatric blood & cancer; Vol 42(5), pp. 489-92. 2004 May.
- A ten-year-old boy with a pulmonary nodule secondary to Cryptococcus neoformans: case report and review of the literature.; The Pediatric infectious disease journal; Vol 22(12). 2003 Dec.
- Taking time.; Journal of clinical oncology : official journal of the American Society of Clinical Oncology; Vol 21(17), pp. 3366-7. 2003 Sep 01.
- Phase I study of temozolomide and escalating doses of oral etoposide for adults with recurrent malignant glioma.; Cancer; Vol 97(8), pp. 1963-8. 2003 Apr 15.
- Do children with optic pathway tumors have an increased frequency of other central nervous system tumors?; Neuro-oncology; Vol 5(2). 2003 Apr.
- Intrathecal thiotepa: reappraisal of an established therapy.; Journal of pediatric hematology/oncology; Vol 24(4), pp. 274-8. 2002 May.
- High incidence of penicillin resistance among alpha-hemolytic streptococci isolated from the blood of children with cancer.; The Journal of pediatrics; Vol 140(1). 2002 Jan.
- WBC-reduced blood transfusions and clinical outcome in children with acute lymphoid leukemia.; Transfusion; Vol 41(7). 2001 Jul.
- The role of surveillance magnetic resonance imaging (MRI) scanning in detecting recurrent brain tumors in asymptomatic children.; Journal of neuro-oncology; Vol 53(1). 2001 May.
- "Liver function tests" are not always tests of liver function.; American journal of hematology; Vol 66(1). 2001 Jan.
- Postoperative evaluation for disseminated medulloblastoma involving the spine: contrast-enhanced MR findings, CSF cytologic analysis, timing of disease occurrence, and patient outcomes.; AJNR. American journal of neuroradiology; Vol 21(9), pp. 1757-65. 2000 Oct.
- No responses to oral etoposide in 15 patients with recurrent brain tumors.; Medical and pediatric oncology; Vol 35(1), pp. 80-2. 2000 Jul.
- A piece of my mind. Saying good-bye.; JAMA; Vol 281(19), pp. 1778. 1999 May 19.
- A 4-year-old girl with a ventriculoperitoneal shunt metastasis of a central nervous system atypical teratoid/rhabdoid tumor.; Medical and pediatric oncology; Vol 32(5). 1999 May.
- Swimming and central venous catheter-related infections in the child with cancer.; Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses; Vol 16(1), pp. 51-6. 1999 Jan.
- Malignant ependymomas in a patient with Turcot's syndrome: case report and management guidelines.; Surgical neurology; Vol 49(3). 1998 Mar.
- Routine chest radiography of children with cancer hospitalized for fever and neutropenia: is it really necessary?; Cancer; Vol 80(6), pp. 1160-4. 1997 Sep 15.
- Lack of relation of granulocyte antibodies (antineutrophil antibodies) to neutropenia in children with human immunodeficiency virus infection.; The Pediatric infectious disease journal; Vol 16(9). 1997 Sep.
- Multiple ependymomas in a patient with Turcot's syndrome.; Medical and pediatric oncology; Vol 28(1). 1997 Jan.
- Primary leptomeningeal histiocytic lymphoma in a young child.; Medical and pediatric oncology; Vol 27(6), pp. 547-50. 1996 Dec.
- High-dose oral dexamethasone therapy in idiopathic thrombocytopenic purpura.; The Journal of pediatrics; Vol 129(5), pp. 772-3. 1996 Nov.
- Right atrial thrombi in children with cancer and indwelling catheters.; The Journal of pediatrics; Vol 128(6). 1996 Jun.
- Intermittent high-dose desferoxamine for patients with iron overload and sickle cell anemia; International Journal of Pediatric Hematology/Oncology; Vol 3, pp. 53-56. 1996 Jan 01.
- Treatment of alloimmune neonatal neutropenia with granulocyte colony-stimulating factor.; The Journal of pediatrics; Vol 125(6 Pt 1), pp. 948-51. 1994 Dec.
- Occult pneumococcal bacteremia: what happens to the child who appears well at reevaluation?; The Pediatric infectious disease journal; Vol 13(5), pp. 382-6. 1994 May.
- Outcome of children with occult bacteremia caused by Haemophilus influenzae type b.; The Pediatric infectious disease journal; Vol 11(7), pp. 516-20. 1992 Jul.
- Treatment of childhood angiomatous diseases with recombinant interferon alfa-2a.; The Journal of pediatrics; Vol 118(1), pp. 59-66. 1991 Jan.
- Regulation of N-myc gene expression in human neuroblastoma.; Progress in clinical and biological research; Vol 366, pp. 55-64. 1991.
- Effect of oligosaccharide chain length, exposed terminal group, and hapten loading on the antibody response of human adults and infants to vaccines consisting of Haemophilus influenzae type b capsular antigen unterminally coupled to the diphtheria protein CRM197.; Journal of immunology (Baltimore, Md. : 1950); Vol 142(7), pp. 2464-8. 1989 Apr 01.
- Normal erythrocyte osmotic fragility in hereditary spherocytosis.; The Journal of pediatrics; Vol 114(2), pp. 264-6. 1989 Feb.
- Liver coenzyme A ester content: comparison between Reye's syndrome and control subjects.; Clinical science (London, England : 1979); Vol 63(5), pp. 455-60. 1982 Nov.