Adult Cystic Fibrosis Program
Our Mission
The mission of the Adult Cystic Fibrosis Program is to provide patient centered, interdisciplinary care to persons with Cystic Fibrosis. We adhere to CF Foundation guidelines for care and are a fully accredited adult CF program.
We are committed to quality improvement and aim to engage with the CF community through our CF patient family advisory council to continuously improve. We collaborate closely with our pediatric CF program as part of the University of Rochester’s larger CF center to assure quality clinical care across the programs and to promote successful transition to the adult program as persons with CF grow into adulthood.
We actively participate in quality improvement initiatives nationally as well as research supported by the CF Foundation’s Therapeutic Development Network. We partner with several lung transplant centers in the northeast to assure that persons needing lung transplantation get the best care possible.
Clinical Services
Our services include:
- In-person and telemedicine visits for regular CF care and acute illnesses
- Inpatient care for persons needing hospitalization
- Infusion center services and outpatient IV antibiotic therapy
- Office-based lung function testing
- Nutrition services including management of enteral feeding
- Comprehensive medication management including diabetes care
- Behavioral health screening and treatment
- Dental care
- Lab testing
- Subspecialty referrals
Our Team
Our team includes:
- Internal medicine/pediatric physicians with CF expertise
- Pulmonary medicine physician
- Nurse practitioners
- Respiratory therapist
- Pharmacologist
- Registered dietician
- Social Worker
- Physical therapist
- Care management
- Program coordinator
- Nursing
- Hospital medicine physicians and nurse practitioners
- Subspecialists in endocrinology, gastroenterology, otolaryngology and surgery
For more information, contact the Complex Care Center at (585) 276-7900 or via email at ComplexCareCenter@urmc.rochester.edu